Myositis - Online Support Group

We are patients affected by myositis, here for your support.

First Time User?

Need a Doctor or Specialist?

Advocacy for Patients with Chronic Illness

Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter are not allowed in the Chat Room.   
5. Specific doctor or hospital names mentioned in a negative context, for legal reasons.    
Specific doctor or hospital names in a positive context are welcome.
Thanks for your cooperation.
 

Birthdays

Birthdays Today

Community Moderators

Photos

Loading…
  • Add Photos
  • View All

"To Know the Joy of Giving"

ClinicalTrials.gov Studies

Loading… Loading feed

Awards

Rare Disease Day 2012 Partner
SavantMD.com Trusted Partner
BensFriends.org Patient Community
Patient Power
 

Please click on FIRST TIME USERS and WELCOME! tabs for helpful info, also the Help tab for Links . THANKS!

Forum

How You Can Help Spread the Word About MyositisSupport.org

Members and friends,We're glad that all of you have managed to find our community, part of the Ben's Friends network of patient communities.  Without a doubt, we will one day be as large and active…Continue

Started by Ben Munoz in General May 18.

Twitter Chat 4 Replies

Hope everybody is well.Would any of you be interesting in being a part of a twitter chat? It could be a fun way to learn about other communities on BF, share your experiences with a rare disease,…Continue

Tags: Chat, Twitter

Started by John "JC" Colyer in General. Last reply by John "JC" Colyer May 18.

What would you do to comfort a sick friend?

"What would you do to comfort a sick friend?"Aside from the usual bouquet of flowers and basket of fruits, I'd like to hear your suggestions, especially from patients, as you would know from your end…Continue

Started by Armando Abrero in General May 9.

Anyone from the UK

Hi, I am based in Scotland and I was wondering if there is anyone in the support group from the UK as well.Any help in dealing with our National Health Service and making employers more aware of the…Continue

Started by Heather Brown in General May 4.

Welcome to Myositis Support!

Welcome to MyositisSupport.org! The purpose of our community is for patients (and their families/friends) affected with Myositis can find information, support and friends.

What can you do on MyositisSupport.org?
1. Share your story on "My Page" & personalize it to reflect who you are!
2. Upload pictures & videos easily.
3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!

Latest Activity


Moderator
John "JC" Colyer gave a gift to Armando Abrero
4 hours ago

Moderator
Ben Munoz's blog post was featured

May 2012 MyositisSupport Community Newsletter

Dear Friends and Family of MyositisSupport,We are so excited we cannot wait to tell you about how…See More
yesterday

Moderator
Ben Munoz posted a blog post

May 2012 MyositisSupport Community Newsletter

Dear Friends and Family of MyositisSupport,We are so excited we cannot wait to tell you about how…See More
Saturday

Moderator
John "JC" Colyer gave a gift to Ronald W. Boben
Saturday

Moderator
John "JC" Colyer commented on John "JC" Colyer's group Affirmations and Quotes
"Don’t base your relationship decisions off of the advice of people who don’t have to…"
Friday

Moderator
John "JC" Colyer gave a gift to Kelly Gourley
Thursday
Armando Abrero posted a blog post

OUR ONLINE PRESENCE IS GROWING!!!

OUR ONLINE PRESENCE IS GROWING!!!Check out this link to view Ben's Friends FB-Twitter Milestone.…See More
May 22
Ben Munoz posted a discussion

How You Can Help Spread the Word About MyositisSupport.org

Members and friends,We're glad that all of you have managed to find our community, part of the…See More
May 18

Videos

  • Add Videos
  • View All

Chat

Active Conversations

Disconnected

    Disconnected

    You are disconnected from chat. Connect to join the chat.

    Suspended From Chat

    Sign up to chat on Myositis - Online Support Group.

    Sign Up

    Blog.Bensfriends.org

    Loading… Loading feed

    Best of Ben's Friends

    Loading… Loading feed

    What is Best of Ben's Friends?

    Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to info@bensfriends.org.

     

    Member Map

     
     
     

    Please Like Us On Facebook and Follow Ben's Friends on Tumblr and Twitter

     

    Follow Me on Pinterest

    To Support MyositisSupport.org, Click an Ad. Or Two.

    Advertise With Us

    Blog Posts

    May 2012 MyositisSupport Community Newsletter

    Dear Friends and Family of MyositisSupport,

    We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…

    Continue

    Posted by Ben Munoz on May 26, 2012 at 7:00am

    OUR ONLINE PRESENCE IS GROWING!!!

    OUR ONLINE PRESENCE IS GROWING!!!

    Check out this link to view Ben's Friends FB-Twitter Milestone.…

    Continue

    Posted by Armando Abrero on May 22, 2012 at 7:06am

    Events

    Badge

    Loading…

    About

    © 2012   Created by BensFriends.org

    Badges  |  Report an Issue  |  Terms of Service