MyositisSupport.org

Patient-to-patient support for people living with myositis

Welcome to Myositis Support!

Welcome to MyositisSupport.org! The purpose of our community is for patients (and their families/friends) affected with Myositis can find information, support and friends.

If you are looking for information about Myositis, we recommend The Myositis Association. Additional helpful sites can be found in the Links section.

What can you do on MyositisSupport.org?
1. Share your story on "My Page" & personalize it to reflect who you are!
2. Upload pictures & videos easily.
3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!

This community is brought to you by BensFriends.org Patient Communities.

Latest Activity

MyositisSupport.org now has leaderboards
20 hours ago
There are 32 members on MyositisSupport.org
21 hours ago
revertdrakos is now a member of MyositisSupport.org
August 14
August 13
Donald Buford is now a member of MyositisSupport.org
July 19
michael Jones updated their profile
July 16
michael Jones updated their profile photo
July 16
michael Jones added a blog post
We have some important information we are happy to announce! As you all know we run support networks for people affected who have a rare disease. We have become so big that we need some organization and direction to continue to grow and help more p…
July 16
July 6
June 18
June 18
dee pope and Lori Willener are now friends
June 18
YES AND OUCH!!! That is some painful stuff - all the tissue connected to the breastbone gets inflamed! At the time, they just kept telling me to take ibuprofen. Also, to stay away from tight fitting clothes (seriously, it hurt to wear a bra!) It too…
June 16
June 16
June 16
dee pope is now a member of MyositisSupport.org
June 15

Blog Posts

Phyllis Barrett

Ardamax

Certain ardamax are great. Certain ardamax are so great, that they call for a sequel. In the event that the 2nd film does not ruin the first, or manages to make a ton of money, studios will occasionally call for a third film to be made. In recent years, this has become more commonplace, but it has not always been this way.


The following are what I believe to be the greatest movie trilogies of all time.


Raid

Continue

Posted by Phyllis Barrett on July 29, 2010 at 9:05am

Donald Buford

Regcure

How do you fancy getting into a regcure in a growing and technologically advancing industry? Get trained for work in the regcure industry and you’ll have the skills to do it. Whether you want to work in the UK or overseas, you could be installing equipment that saves CO2 consumption and cuts regcure bills within months of starting a course.


Fuel prices are continuing to rise as gas and oil is steadily running out. Carbon emission

Continue

Posted by Donald Buford on July 19, 2010 at 10:53am

michael Jones

An Introduction to Bensfriends.org

We have some important information we are happy to announce!




As you all know we run support networks for people affected who have a rar

Continue

Posted by michael Jones on July 16, 2010 at 12:01am

Forum

Crystal B

Costochondritis 1 Reply

Anyone else experience this? How often? How do you ease the pain? Thanks!

Started by Crystal B. Last reply by Lori Willener Jun 17.

Kristin Renz

Creative Outlet....Poems, Pictures, etc.... 4 Replies

II am not alone, but I feel lonely sometimes.I can walk, but I can't run.I laugh because I don't like to cry.I sleep when I'm exhausted.I play when I have energy.I have accepted my disease, but I sti…

Started by Kristin Renz. Last reply by Crystal B Jun 10.

Kristin Renz

THINGS MYOSITIS PATIENTS WOULD LIKE TO TELL ALL DOCTORS ABOUT MYOSITIS 4 Replies

THINGS MYOSITIS PATIENTS WOULD LIKE TO TELL ALL DOCTORS ABOUT MYOSITIS: SYMPTOMS: . There is pain with Myositis. . All patients are different and can have different symptoms with the same disease. .…

Started by Kristin Renz. Last reply by Kristin Renz Jun 4.

Lori Willener

Meds! 2 Replies

Hey Everyone ~  Have had two ct scans (no cancer), echo with bubble study, and now need to see a pulm specialist to have lung nodules evaluated.  I am doing a pulse dosing of pred, again, and still o…

Started by Lori Willener. Last reply by Lori Willener May 25.

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