Myositis Support Group
Myositis is an inflammation of the muscles, which can be caused by injury, infection, reaction from certain medications, and even exercise. Some forms of Myositis are chronic and idiopathic, meaning the cause is unknown or not well understood. Types of Myositis include dermatomyositis (DM), polymyositis (PM), juvenile myositis (JM), and inclusion-body myositis (IBM).
Mission and Rules at Myositis Support
Getting Started on Discourse
Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.
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Newbies Guide to Myositis
Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information
Preparing For An Appointment With A New Doctor
Great Resource that Explains PM, DM and IBM
General Discussion about topics related to Myositis
New study deems successful in reversing IBM symptoms!
Myositis Awareness Month
Welcome to Complementary Therapies! This is the place to discuss the array of complementary healing modalities that many of us rely on to help us live healthier lives. Whether you're looking to do more to promote your own health while undergoing medical treatment, or are waiting to get medical treatment and are looking to do what you can to feel better in the meantime, this is the place to post your questions and information. We will discuss everything from acupuncture and chiropractic to nourishing our bodies, minds, and spirits. This is the place to discuss healing modalities that can complement medical treatment.
DM and Diet
Having a rough day? We're here to listen.
Suicide Hotline Numbers
New Member Checkin
New members, start your experience here. Introduce yourself and share your story. Let us welcome you
Prayer and Healing Energy Requests
A place to request prayers and healing energy for yourself or others, from our community of caring, supportive friends, for any issue(s) we deal with.
This is our new group messaging area. Just enter a reply. If you want to send private chat simply click on the mebers avatar and start messaging. You can invite others to join you. You can also message by clicking on your avatar and the envelope in the top line
Group Messaging for Mysotitis
Recommend a Doctor, Therapist, or Clinic
Want to recommend a doctor, therapist, or clinic? Positive review only, please.
Current Medications and Physicians List
Rheumatologist Recommendation in Michigan
News from Bens Friends -
Moderators Hall of Fame
News from Bens Friends -
Discussion about this site, its organization, how it works, and how we can improve it.
Myositis Support Network
a patient to patient support network for patients, family members and caregivers effected by Myositis. This is our new site hosted by Discourse. If you were a member at our old site, Simply click "sign in," enter your old user name (or email address you signed up with) then click forgot "password." You will be sent a link to reclaim your profile. If you are New PLEASE create a new account. We would love to have you apart of the community
Click on User Avatar to PM or Your Avatar to enter messaging system (Click on envelope)
Myositis Hangout (chat)