Myositis - Online Support Group

We are patients affected by myositis, here for your support.

Forum Discussions (10)

Featured Discussions
Ben Munoz

How To Make Our Community Easier to Find

A member of our sister site http://www.ChiariSupport.org posted a tutorial on how to make our community easier to find on the internet by l…

Started by Ben Munoz in GeneralLatest Reply

Discussions Replies Latest Activity
Meleah

Working with Myositis

I would love to hear from other community members who are able to work what are some secrets to being able to stay in the game.  

Started by Meleah in General

2 Feb 4
Reply by Meleah
Denise Hribar

Emotional Stress - I am having a hard time dealing with this!

Hi - I was diagnosed with polymyositis at the end of October, less than a month ago. My doctor has me on disability until the middle of Jan…

Started by Denise Hribar in General

6 Jan 17
Reply by Meleah
Ben Munoz

How to Create Group and Organize A Meetup in Your City

Since others have subsequently asked about organizing groups and meetups in their area, the moderators and I have decided to create this fo…

Started by Ben Munoz in General

0 Dec 19, 2011
Crystal B

Costochondritis

Anyone else experience this? How often? How do you ease the pain? Thanks!

Started by Crystal B in General

2 Nov 18, 2011
Reply by Denise Hribar
Ben Munoz

Trouble with the Send Button (or Other Buttons)

Apologies, this is a re-ocurring problem. I've found that if I scroll down on the page farther, creating 2 inches between the "Send" button…

Started by Ben Munoz in General

0 Aug 13, 2011
Ben Munoz

How To Make Our Community Easier to Find

A member of our sister site http://www.ChiariSupport.org posted a tutorial on how to make our community easier to find on the internet by l…

Started by Ben Munoz in General

0 Jun 28, 2011
maggie wright

dermatomyositis panniculitis

Does anyone have this condition if so what treatment are you using. My husband has this form of dermatomyositis and it is affecting his fac…

Started by maggie wright in General

8 Apr 24, 2011
Reply by Robert
Lori Willener

Meds!

Hey Everyone ~  Have had two ct scans (no cancer), echo with bubble study, and now need to see a pulm specialist to have lung nodules evalu…

Started by Lori Willener in General

2 May 25, 2010
Reply by Lori Willener
Vonda Kelsey

Fortea injections

tell me about this drug. I break so many bones because of the Dosage of Predisone and i've been on it since 2002, 20 to 60 mg. up and down…

Started by Vonda Kelsey in General

0 Apr 22, 2010
Russ Meitzler

Fortea Treatment for Bone Loss Due to Prednisone

Hello .......  Has anyone used, or knows of anyone that has used, the daily self-injectable medication called Forteo to "build-up/restore"…

Started by Russ Meitzler in General

0 Mar 29, 2010

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