Myositis - Online Support Group

We are patients affected by myositis, here for your support.

General (18)

Featured Discussions

Prednisone and muscle pain?

Hello all! I've read that it's unusual to get muscle pain with DM and PM, yet after I start taking Prednisone (I was given it way before di…

Started by Nichole SmithLatest Reply

Emotional Stress - I am having a hard time dealing with this!

Hi - I was diagnosed with polymyositis at the end of October, less than a month ago. My doctor has me on disability until the middle of Jan…

Started by Denise HribarLatest Reply

Anyone from the UK

Hi, I am based in Scotland and I was wondering if there is anyone in the support group from the UK as well. Any help in dealing with our Na…

Started by Heather BrownLatest Reply

Discussions Replies Latest Activity

How You Can Help Spread the Word About MyositisSupport.org

Members and friends, We're glad that all of you have managed to find our community, part of the Ben's Friends network of patient communitie…

Started by Ben Munoz

0 May 18

Moderator

Twitter Chat

Hope everybody is well. Would any of you be interesting in being a part of a twitter chat? It could be a fun way to learn about other commu…

Started by John "JC" Colyer

4 May 18
Reply by John "JC" Colyer

What would you do to comfort a sick friend?

"What would you do to comfort a sick friend?" Aside from the usual bouquet of flowers and basket of fruits, I'd like to hear your suggestio…

Started by Armando Abrero

0 May 9

Anyone from the UK

Hi, I am based in Scotland and I was wondering if there is anyone in the support group from the UK as well. Any help in dealing with our Na…

Started by Heather Brown

0 May 4

Emotional Stress - I am having a hard time dealing with this!

Hi - I was diagnosed with polymyositis at the end of October, less than a month ago. My doctor has me on disability until the middle of Jan…

Started by Denise Hribar

12 Apr 28
Reply by Nichole Smith

Prednisone and muscle pain?

Hello all! I've read that it's unusual to get muscle pain with DM and PM, yet after I start taking Prednisone (I was given it way before di…

Started by Nichole Smith

10 Apr 28
Reply by Natalie Bauman

North Texas Myositis patients - there is a support group meeting Saturday May 19 2012

North Texas Myositis patients - there is a support group meeting Saturday May 19 2012 at the Texas Health Presbyterian Dallas Hospital  820…

Started by Natalie Bauman

0 Apr 25

Feeling It

Tried to walk to my daughter's softball field where they were having her first practice and had to turn around and go back to the car after…

Started by Nichole Smith

0 Apr 9

Is anyone attending the 2012 Myositis patient conference?

I attended the TMA patient conference last year and it was so very wonderful to talk to others like myself. I was also very impressed with…

Started by Lorelei Cohen

1 Apr 8
Reply by Meleah

Working with Myositis

I would love to hear from other community members who are able to work what are some secrets to being able to stay in the game.  

Started by Meleah

6 Mar 29
Reply by Meleah

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Blog Posts

May 2012 MyositisSupport Community Newsletter

Dear Friends and Family of MyositisSupport,

We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…

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Posted by Ben Munoz on May 26, 2012 at 7:00am

OUR ONLINE PRESENCE IS GROWING!!!

OUR ONLINE PRESENCE IS GROWING!!!

Check out this link to view Ben's Friends FB-Twitter Milestone.…

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Posted by Armando Abrero on May 22, 2012 at 7:06am

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