Meds!

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Permalink Reply by Angela on May 16, 2010 at 7:36pm

I was on cellcept for about 3 years, just recently got off of it last summer. And I can honestly say that I don't think it helped me at all. But, then again, just because it didn't help me doesn't mean it won't help you.
I am currrently tapering off metho, been on it since I was 5 (Im now 21) and I do believe it's a wonder drug for people with myositis (especially those in a flare).
Prednisone, as mush as I hate to say it, does help with inflammation and is also somewhat of a wonder drug. The downside of it is the side effects. I was pretty much a crazy woman when I was on pred, but if you are in immense pain then I do suggest going back on prednisone until you find a better solution for yourself. Diet is very important when you are on prednisone, helps with the side effects.
Hope I helped!!
-Angela

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Permalink Reply by Lori Willener on May 25, 2010 at 4:21pm

Angela ~ Thanks so much for the info. You now how it is, I have to ask about this way in advance before the appt comes up so I can get the most out of the dr's appt. Just saw him last week and we are going to go ahead and keep pulse dosing for awhile with prednisone for most of the summer and then re-evaluate if we should add Metho, Cellcept or Imuran. At least I have some idea on Cellcept. Thanks again and hope you are doing well!

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