Myositis - Online Support Group
We are patients affected by myositis, here for your support.
MyositisSupport Members, Friends and Family,
We hope this message finds you well with high spirits and inner joy. We’re happy to inform you that our Myositis community continuously been growing. And as always, we’re here to give strength and support.
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IN THIS ISSUE
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2. Give the Gift of Support Through The Indiegogo Campaign
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Welcome New Members
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No obstacle in life is too great, as long as you have the love and support of caring friends and family members. As always, we are here 24/7 to provide encouragement and support to patients who experience challenges in life. You, your family and friends are more than welcome to be a part of this loving group. Feel free to share your thoughts, and reach out to the other members who are always willing to give you the kind of support you need. Consider this amazing community as your second home, as it is also the home of our 68 members (and still growing!)
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Give the Gift of Support to Patients with Rare Diseases Through The Indiegogo Campaign
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Many projects at Ben’s Friends have turned into reality – thanks to the support from members, volunteers, and donors. Despite the many milestones we have reached, there is still a longer distance we have to go. Many patients with rare diseases still do not have a community to support them. We constantly receive e-mails that request for a support group for a certain rare disease. However, we cannot accommodate all those requests.
Help us make this happen. We want to continue support patients and create more communities that will make everyone with rare diseases feel that they are not alone. Thus, we would like to invite donations from friends, family members, and everyone who believes in our cause.
This month, we’ve begun our annual sponsorship drive at Indiegogo.com.
If you are on Facebook, please ask your friends to share the link with a little note. If you’re not on Facebook, an email also works. Businesses are encouraged to purchase a sponsorship.
Here is the link: http://www.indiegogo.com/Bens-Friends-Builds-Support-Groups-for-Pat...
We will truly appreciate any donations you can give. We want to sustain the support and friendship we give. With your help, we know we always can.
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Community Stats
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As of today, we have 68 members, 185 total monthly visits to site, 123 unique visitors and 777 monthly page views. Kudos to everyone!
Warmest Regards,
Your Community Moderators
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
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Ataxia (U.S.A.)
Atrial Septal Defect
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
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Myositis
Narcolepsy
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Dear Friends and Family of MyositisSupport,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
ContinuePosted by Ben Munoz on May 26, 2012 at 7:00am
OUR ONLINE PRESENCE IS GROWING!!!
Check out this link to view Ben's Friends FB-Twitter Milestone.…
Posted by Armando Abrero on May 22, 2012 at 7:06am
© 2012 Created by BensFriends.org
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