This is my first time posting! I am ready to tell my story, I want feedback please!!
At the end of July, july 29th to be exact. I lost all vision in my right eye. I went to the ER and they weren’t sure what to do. I went to another ER not sure. Thought I had MS, or optic neuritis. With vision gone, I went to a Neuro-opthomogolgy office and they also weren’t sure what to do! My eye was swollen, it went droopy and I was in so much pain.
With a million different thoughts of diagnosis I gave up and went to the nearest children’s hospital. Saw a rheumotogist who is my life saver! I was ready on high dose of prednisone, and I loved it! But hated it also…worst enemy, but best friend anyway! by this time it was October and I FINALLY got a diagnosis, which was orbtial myositis. My eye muscles have zero hope. I am on prednisone still, along with methotrexate and Remicaide!
If anyone knows anything about OM, or knows anyone with this please get ahold me of me!! I would love to talk!