My good friend Julissa has the anti srp antibody as well. She has had this disease for twelve years. Her family is very supportive and I believe she is alive today because of their help and support.
No drugs worked well for her. She experienced much muscle weakness and necrosis over the years which severely impaired her ability to do daily activities and at this point move. However, since starting her Rituximab infusions in 2013, she has seen significant improvement in her condition. She is doing so very well on this treatment and I want to tell the world that if you have the anti-SRP antibody it can help.
I just returned from the conference and the doctors told us that she is part of the 50% of patients with the anti-SRP antibody that the drug will work on. She was happy to hear that.
I too have experienced much success on Rituximab. It helped me go into medicated remission. I get infusions every 6 months and I feel great.
I hope this helps. Please know there is definitely hope expecially since you will be starting the drug early. If you are part of the 50% that it works on, it will definitely interfere with the disease course and will help you stay on your feet longer than without it.
Please stay strong and keep the faith. There are a number of drugs that can help you. Also, remember that you are not alone. This disease has brought me into contact with many many wonderful people I feel honored to be fighting alongside.
Nice to meet you.
My email address is ■■■■■■■■■■■■■■■■■■■ if you want to email me further questions.